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Africa/Middle East

Ambassadors

Ambassadors work as part of our outreach team for WPC 2019 in Kyoto, Japan from June 4-7, 2019. They give talks at local support groups, write articles in papers or on blogs, make themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress. 

Debbie Shapiro (Israel) was diagnosed in 2014. She is a professional writer who has published five books and close to a thousand articles. She recently started Tikvah for Parkinson’s to provide education and services to people with Parkinson’s in Jerusalem.

 

To get in contact with an Ambassador, click here.

 

Delegate Leaders

Delegate leaders are people organizing groups to travel to the 5th World Parkinson Congress. There are currently no Delegate Leaders in this region. Learn more about becoming a Delegate Leader.

 

Organizational Partners

The following organizations are our official partners in South America. If you are looking for additional services or information on Parkinson's Disease, check out their websites:

Is your non-profit organization interested in being an official WPC Organizational Partner? Contact us at info@worldpdcoalition.org


Asia

Ambassadors

Ambassadors work as part of our outreach team for WPC 2019 in Kyoto, Japan from June 4-7, 2019. They give talks at local support groups, write articles in papers or on blogs, make themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress. 

Meng Chuo Wong (Malaysia) was diagnosed with Parkinson’s in 2015. He is currently chair of the Sibu Parkinson Society in Sarawak.

Michael Tan Tian Seng (Singapore) was diagnosed with Parkinson’s in 2006. He has worked as a technician fro the Singapore civil service, a horticultural contractor, a locksmith and as a cab driver. He is currently a member of the Parkinson Society of Singapore.

 

To get in contact with an Ambassador, click here.

 

Delegate Leaders

Delegate leaders are people organizing groups to travel to the 5th World Parkinson Congress. We currently don't have any Delegate Leaders in this region. Learn more about becoming a Delegate Leader.

 

Organizational Partners

The following organizations are our official partners in Europe. If you are looking for additional services or information on Parkinson's Disease, check out their websites:

Is your non-profit organization interested in being an official WPC Organizational Partner? Contact us at info@worldpdcoalition.org


Europe

Ambassadors

Ambassadors work as part of our outreach team for WPC 2019 in Kyoto, Japan from June 4-7, 2019. They give talks at local support groups, write articles in papers or on blogs, make themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress. 

Elisabeth Ildal (Denmark) was diagnosed with Parkinson’s in 2013. She is currently a local politician in Denmark and founder of Cure4Parkinson.

Emma Lawton (United Kingdom) was diagnosed in 2013. She is a trained creative director and designer and a consultant on creativity running workshops and giving talks. For the past year she has been working on her 365 day video blog to help raise awareness for PD.

Cathy Molohan (Ireland & Germany) has been living with Parkinson’s since 2011. She is part owner and director of her own business, which trains and translates in English. She also runs a Facebook group for people with Young onset PD.

David Sangster (United Kingdom) has been living with Parkinson’s since 2011. He does tremendous advocacy work in the UK through Cure Parkinson’s Trust and Parkinson’s UK.

Cherry Vogt-Ward (Barbados & Switzerland) was diagnosed with Parkinson’s in 2007. She is a mother of three and has worked as a production assistant for various television programs and as a back up singer. She later founded The Barbados Parkinson’s Trust and Support Group to raise awareness about the disease.

Rune Vethe (Norway) has been living with Parkinson’s since 2009. He is a family therapist and teacher educated in Sport and Physical education. He volunteers with the Norwegian Parkinson Disease Organization.

 

To get in contact with an Ambassador, click here.

 

Delegate Leaders

Delegate leaders are people organizing groups to travel to the 5th World Parkinson Congress. The following people are organizing local groups.

Philip Bungay (United Kingdom) is the lead coordinator for the Parkinson's UK Medway Working Age Group, Co-chair of the Medway Neurological Network and a member of the Young Parkinson's Alliance, which is hosted by Parkinson's UK and is an umbrella group for several different Parkinson's charities in the UK for PwPs who were diagnosed with Parkinson's at 45.

 

To get in contact with a Delegate Leader, click here.

Learn more about becoming a Delegate Leader.

 

Organizational Partners

The following organizations are our official partners in Europe. If you are looking for additional services or information on Parkinson's Disease, check out their websites:

Is your non-profit organization interested in being an official WPC Organizational Partner? Contact us at info@worldpdcoalition.org

 


North America

Ambassadors

Ambassadors work as part of our outreach team for WPC 2019 in Kyoto, Japan from June 4-7, 2019. They give talks at local support groups, write articles in papers or on blogs, make themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress. 

Allison Smith, Co-Chair (United States) was diagnosed with Parkinson’s in 2010. She is a licensed Marriage and Family Therapist and Wellness Life Coach and currently works in a movement disorder center seeing people newly diagnosed or going through Parkinson’s related life style changes.

Jillian Carson, Co-Chair (Canada) has been living with Parkinson’s disease since 2010. She has a BSc in Physical Therapy and a Masters in Disability Management. Her focus is on the role of exercise in slowing the role of PD.

Alejandra Borunda ( Latin America & United States) was diagnosed with Parkinson’s in 2015. She currently works at a campus for homeless people in downtown Pheonix, AZ and is a certified volunteer for the Muhammad Ali Parkinson’s Center.

A.C. Woolnough (United States) has been living with Parkinson’s since 2013. He worked for 37 years as an English teacher and principal in California, Idaho, and Alaska. He now spends his time aa a Parkinson’s advocate and writes a monthly column for an Idaho magazine.

Cherry Vogt-Ward (Barbados & Switzerland) was diagnosed with Parkinson’s in 2007. She is a mother of three and has worked as a production assistant for various television programs and as a back up singer. She later founded The Barbados Parkinson’s Trust and Support Group to raise awareness about the disease.

 

To get in contact with an Ambassador, click here.

 

Delegate Leaders

Delegate leaders are people organizing groups to travel to the 5th World Parkinson Congress. The following people are organizing local groups.

Shirley Burke (Iowa, United States) I am happily married with a 13-year old son. I currently live in West Des Moines, Iowa. Since my official diagnose of young onset parkinson’s in 2013, I have been actively involved with the American Parkinson’s Disease Association Iowa Chapter young onset Parkinson’s support group. I am excited to be selected as the program lead, because it will give me an opportunity to be connected with others within the Parkinson’s community, and be able to take what I learned from others and share with members of my group here in Iowa!

Nasrin Esnaashari (California, United States) My name is Nasrin; I am a Certified Nurse Practitioner at University of Southern California Keck School of Medicine, Department of Neurology. I am involved with clinical evaluation, teaching, research protocols, multidisciplinary meetings and management of patients with deep brain stimulators (DBS) for more than 20 years. My research is focused on improving the quality of care for patients with deep brain stimulator and in conjunction with my colleagues; we examined the patient expectation and outcome after DBS.

Melissa Rehm (Kentucky, United States) Melissa lives with Secondary Parkinsonism, Ataxia, and Dystonic Tremor. She began her journey at the age 41. After years of multiple doctor visits, exams, and tests, she received a diagnosis of Young Onset Parkinson's Disease (YOPD) in 2012. Though it came during a challenging time of being a wife, with two young daughters, and working in the school district, having a label was welcomed. In 2017, the diagnosis was changed to Secondary Parkinsonism with Ataxia and Dystonic Tremor.

In 2015, Melissa started a support group online, Never Give Up PD, to share and learn tips with other People with Parkinson's (PwP’s) and their loved ones. Today, it’s known as Parkinson’s International - Never Give Up (PINGU)

Sukhee So (Oregon, United States) Sukhee So is a physical therapist living in Portland, Oregon (USA). She has a passion working with people with Parkinson's Disease both in the clinic and with the Parkinson's Resources of Oregon (PRO) in her town. She truly believes the importance of movement based activities and incorporates this with the people she works with on a regular basis. When she can, Sukhee also enjoys competing in triathlons and traveling, and looks forward to participating in the 2019 WPC in Kyoto!

Ginette Trottier (Canada) I was first exposed to Parkinson's disease almost 15 years ago with a cousin who had Parkinson's disease. As my career grew in the health field, I got to know and work with a multitude of people living with PD. I joined the Parkinson Canada team in 2010 and have been inspired ever since. I had the opportunity to attend WPC 2013 in Montreal and WPC 2016 in Portland. The experiences were amazing and I look forward to meeting new people and learning new developments in PD treatments and research in Kyoto next year. In my spare time I enjoying rescuing cats and give them a better life.

 

To get in contact with a Delegate Leader, click here.

Learn more about becoming a delegate leader.

 

Organizational Partners

The following organizations are our official partners in North America. If you are looking for additional services or information on Parkinson's Disease, check out their websites:

Is your non-profit organization interested in being an official WPC Organizational Partner? Contact us at info@worldpdcoalition.org

 


Oceania

Ambassadors

Ambassadors work as part of our outreach team for WPC 2019 in Kyoto, Japan from June 4-7, 2019. They give talks at local support groups, write articles in papers or on blogs, make themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress. 

Mike Atkinson (Australia) was diagnosed with Parkinson’s in 2013. Professionally he has a long history in labor politics mainly on the union side. He is a peer support group coordinator for Young@Parks.

Andy McDowell (New Zealand) has been living with Parkinson’s since 2009. He is a professional marketer with 25+ years of marketing strategy, brand and communications experience.

Karyn Spilberg (Australia) has been living with Parkinson’s since 2002. She is a retired school teacher and currently serves as a board member for Parkinson’s Victoria.

 

To get in contact with an Ambassador, click here.

 

Delegate Leaders

Delegate leaders are people organizing groups to travel to the 5th World Parkinson Congress. The following people are organizing local groups:

Alyson Blanks (Australia) Alyson first became involved with Parkinson’s New South Wales (NSW) when a client, who had Parkinson’s, came to her for an exercise program. Alyson has now worked at Parkinson’s NSW for 5 years and is currently designing and implementing an exercise initiative, to be delivered all across New South Wales, to compliment the suite of support services offered by Parkinson’s NSW.
Alyson became involved with WPC when organising a group of Parkinson’s NSW delegates to attend the Portland Oregon WPC in 2016. She is very excited to again be involved with WPC in Kyoto.

 

Learn more about becoming a Delegate Leader.

Organizational Partners

The following organizations are our official partners in Oceania. If you are looking for additional services or information on Parkinson's Disease, check out their websites:

Is your non-profit organization interested in being an official WPC Organizational Partner? Contact us at info@worldpdcoalition.org


South America

Ambassadors

Ambassadors work as part of our outreach team for WPC 2019 in Kyoto, Japan from June 4-7, 2019. They give talks at local support groups, write articles in papers or on blogs, make themselves available to speak about the WPC to communities wanting to learn more about why to attend a World Parkinson Congress. 

Alejandra Borunda (Latin America & United States) was diagnosed with Parkinson’s in 2015. She currently works at a campus for homeless people in downtown Pheonix, AZ and is a certified volunteer for the Muhammad Ali Parkinson’s Center.

 

To get in contact with an Ambassador, click here.

 

Delegate Leaders

Delegate leaders are people organizing groups to travel to the 5th World Parkinson Congress. There are currently no Delegate Leaders in this region. Learn more about becoming a Delegate Leader.

 

Organizational Partners

The following organizations are our official partners in South America. If you are looking for additional services or information on Parkinson's Disease, check out their websites:

Is your non-profit organization interested in being an official WPC Organizational Partner? Contact us at info@worldpdcoalition.org

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